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WE DON’T WANT A SINGLE PERSON TO GET SICK WITH TUBERCULOSIS. WE AIM TO ACHIEVE THAT BY COMBINING STORIES AND SCIENCE.
TB Proof aims to end the TB pandemic by
Two of our TB Proof members, Zolelwa Sifumba and Phumeza Tisile, shared the stage with Bill Gates, Bono, Peter Sands, President
Macron of France and affected community representatives to advocate for increased funding at the Global Fund 6th Replenishment
in Lyon in 2019 to fight TB, HIV and Malaria. Photo credit: The Global Fund/ Nicolas Rodet.
Being part of TB Proof saved my life. When
I joined I was struggling through the harsh
treatment alone, without support but being
welcomed in to TB Proof I had a family of TB
survivors.
A family who helped save my life and also taught me
how to use my own voice to advocate for change.
An advocate and activist was also born and with my
voice I now fight against the occupational illnesses
faced by health care workers, including
TB. With our voices I believe we can end
TB, along with other illnesses”.
Zolelwa Sifumba
Drug-Resistant TB survivor, South Africa
Photo credit: The Global Fund
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"Voices from civil society groups, such as Tisile and Rensburg, are important in the global anti-TB fight. For example, in March, the Indian government rejected an application from Johnson & Johnson (J&J) to extend their patent on bedaquiline. One of the things that helped the officials reach their decision was a petition Tisile filed with Indian TB activist Nandita Venkatesan in 2019…"![]()
#SliceOfLife: I took on Big Pharma and won – Bhekisisa
bhekisisa.org
Around the time Phumeza Tisile was receiving treatment for extensively drug-resistant tuberculosis (XDR-TB), the cure rate for patients with that form of the disease was 15%. Tisile beat XDR-TB despit…
“As long as you can breathe, you can get TB. As an activist, I believe that we need to change attitudes and educate people on the disease” ![]()
– Goodman Makanda, TB survivor![]()
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Read more about Goodman’s story on how he survived the most deadliest type of TB.
I survived the most deadly type of TB, but it cost me a lung
www.businesslive.co.za
At first, the MDR-TB treatment was going well, but then he developed extensively drug-resistant TB — and he had to swallow up to 40 different pills each day
Post-TB health and wellbeing:![]()
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The development of this clinical statement is built upon the momentum of the 1st International Post-Tuberculosis Symposium held in Stellenbosch, South Africa, in 2019. This statement aims to provide clinicians with a preliminary guide to help diagnose and treat post-TB conditions as well as to encourage research in this field. The clinical statement discusses post-TB economic, social, and psychological wellbeing, PTLD, cardiovascular and pericardial disease, neurological disabilities, and post-TB effects on youth and children.![]()
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TB Proof member and TB survivor, Ingrid Schoeman’s story was shared as part of this publication.![]()
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Click on the link below to read more:![]()
www.ncbi.nlm.nih.gov/pmc/articles/PMC10094053/
“When Goodman Makanda was diagnosed with multidrug-resistant tuberculosis (MDR-TB) in 2012, his doctors and nurses assumed that he’d developed this form of the disease because he stopped taking his TB medicine before his drug course was completed. But in reality, he had never been diagnosed with TB before — or taken treatment.![]()
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Makanda’s experience turned him into an activist. In this #SliceofLife, he breaks down his struggle with TB treatment. #SliceofLife stories are Bhekisisa’s short, first-person accounts of the experiences of some of the people we interview.”![]()
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Bhekisisa Centre for Health Journalism
#SliceOfLife: I survived the most deadly type of TB, but it cost me a lung – Bhekisisa
bhekisisa.org
Goodman Makanda survived the most drug-resistant form of tuberculosis that scientists know of, but he lost a lung to the disease in the process. Now, he says he would “rather die” than take handfu…